Thursday, 6 November
Hall Lielupe, Radisson blu hotel Daugava
| 13:00-13:50 | Registration/Coffee/Networking/Industry Exhibition |
Moderators: | Elina Aleksejeva (LV), Maire Vasar (EE), Valdone Miseviciene (LT) |
| 13:50-14:00 | Opening performance |
| 14:00-14:15 | Introduction. Opening of the conference Day 1. Board members of the Childrens' Clinical University Hospital Z. Straume/V. Ābols (LV) |
| 14:15:14:35 | The ECFS/CFE Twinning Project together with CF centres from the UK and France. Assoc. Prof. emeritus Maire Vasar (EE), Lena Thia (UK), E. Aleksejeva (LV), Stephanie Bui (FR) |
| 14:35-14:55 | First-Year Experience and challenges of CFTR Modulator Therapy in Estonia. Silvi Plado (EE) |
| 14:55-15:15 | First-Year Experience of CFTR Modulator Therapy in the Pediatric Population in Lithuania. Prof. Valdonė Misevičienė (LT) |
| 15:15-15:35 | First Experience with CFTR Modulator Therapy in the Adult Population and National CF Guidelines. Prof. Kęstutis Malakauskas (LT) |
| 15:35-15:55 | First year Experience of CFTRm in Latvia- challenges, clinical cases. Elina Aleksejeva/Dita Gaidule Logina (LV) |
| 15:55-16:00 | Open discussion with experts |
| 16:00-16:15 | Coffee Break/Networking/Industry Exhibition |
Moderators: | Rūdolfs Vilde (LV), Kestutis Malakauskas (LT), Tanel Laisaar (EE) |
| 16:15-16:45 | Is lung transplantation feasible in very small country? Assoc. Prof. Tanel Laisaar (EE) |
| 16:45-17:00 | Complex and interesting Clinical Cases in Cystic Fibrosis, patients with Lung Transplantation. Anastassia Kamõnina (EE) |
| 17:15-17:45 | Norwegian Experience with Lung Transplantation at Oslo University Hospital. Inga Leuckfeld (NO) |
| 17:45-18:00 | Open discussion with experts |
Moderators: | Mārtiņš Purenkovs (LV), Lota Ozola (LV), Guoda Vaitukaitienė (LT) |
| 18:00-18:30 | Home Respiratory support experience in Latvia, challenges and future directions. Martins Purenkovs (LV) and Lota Ozola (LV) |
| 18:30-18:50 | Home mechanical ventilation in Lithuania: seeking optimal patient care. Guoda Vaitukaitienė (LT) |
| 18:50-19:00 | Open discussion with experts/closing |
Friday, 7 November
Hall Lielupe, Radisson blu hotel Daugava
8:30-8:55 | Registration |
Moderators | Silvi Plado (EE), Ineta Grantiņa (LV), Tavs Qvist (DK) |
| 08:55-09:00 | Introduction. Opening. |
| 09:00-09:30 | Nothing to do with CF: Year in review on chILD. Prof. Nadia Nathan (FR) |
| 09:30-10:00 |
New applications of CFTR modulators in rare lung diseases (focus on ABCA3). Prof. Nadia Nathan (FR)
|
| 10:00-10:30 | Next-Generation CFTR Modulator Therapy: Future Perspectives. Tavs Qvist (DK) |
| 10:30-11:00 | Clinical cases (3 paediatric). Silvi Plado (EE) Giedre Kojeliene (LT) Anna Beāte-Apsīte (LV) |
| 11:00-11:15 | Coffee Break/Networking/Industry Exhibition |
Moderators: | Mārtiņš Purenkovs (LV), Jacek Nasilowski (PL), Carla Ribeiro (PT) |
| 11:15-11:45 | Indications for and Monitoring of Home Mechanical Ventilation. Prof. Jacek Nasilowski (PL) |
| 11:45-12:15 | Palliative care in pulmonary fibrosis patients. Asst. Prof. Carla Ribeiro (PT) |
| 12:15-12:45 | Clinical cases (3 adults) Anna Saliņa (LV), Ēriks Vidžups (LV), Viktoria Ivanova (EE) |
| 12:45-13:00 | Questions / Discussions |
| 13:00-14:00 | Lunch. Restaurant |
| Moderators: | Prof. Lutz Naehrlich (DE), Lena Thia (UK), Stephanie Bui (FR) |
| 14:00-14:15 | Welcome and Foreword from Patient Representatives, Latvian CF Association and the CF Europe President. Elīna Aleksejeva (LV), Alla Beļinska (LV), Thierry Nouvel (FR) |
| 14:15-14:45 | Current status of the ECFSPR - focusing on the Baltic countries and their neighbours. Prof. Lutz Naehrlich (DE) |
| 14:45-15:15 | The role of radiology (CT, MRI) and patient monitoring in the CFTRm era. Stephanie Bui (FR) |
| 15:15-15:45 |
The role of Multiple Breath Washout as a monitoring tool for early lung disease in the CFTR modulator era. Lena Thia (UK)
|
| 15:45-16:00 | Coffee Break/Networking |
| 16:00-16:30 | The Practical Application of BIA & Body Composition Guidelines in CF. David Proud (UK) |
| 16:30-17:00 | Adapting to Change: Psychological and Developmental Perspectives in the CFTRm Era. Steven Stirk (UK) |
| 17:00-17:15 | Questions / Discussions/Closing |